Friday, September 10, 2010

A bittersweet day

Tuesday, We went to see Dr. Hooker at MUSC.  She said Jack's progress was doing well, and he only had to wear his braces for night/naptime!  Yea!  Finally a little more freedom to move without restrictions!  Jack seems to be adjusting just fine, although I think it is more exciting for me than for him!   We discussed with Dr. Hooker our plan to seek an opinion from some orthopedic surgeons in St. Louis close to Christmas time.  That way we could try to visit family who has never seen jack and also get some additional opinions regarding his arm/leg. 

DR. Hooker told us that she was planning on leaving MUSC in November and we would be under another doctor's care.  Normally, I would not become emotional about such things - however I was consumed with emotion as I started to cry (in front of her, the medical student and James). A flood of emotions came back to me remembering that She was there the first few days after Jack was born to tell us about his Right leg and the prospects for amputation.  THAT day was one of the most difficult days for James and I - having to swallow a giant reality for Jack that we were hoping may not have to be true.  Dr. Hooker spoke with us with such pose and compassion, and a sensitivity that we needed.  She held our hands- so to speak -  through the very earliest days. Almost 6 months later, we all have come a long way in our journey together:  from a new cast on his leg every week for 8 weeks, to his surgery on his heel,  to the braces.  She has kept our eyes open to the Possibilities for Jack, and has always focused on his strengths.  THIS is what needed to get to where we are.  It was a bittersweet day.

Friday, August 27, 2010

5 months old!

As you can see... I am wearing special braces on my legs.  (Shoes with a bar connecting them.)  At first I was kind of annoyed by them, but now I am used to them!  It does not stop me from playing, or rolling over!  Mommy says I have to wear them 23 hours a day!  But soon I only have to wear them at night/nap time!  YEA!!!
 So I'm 5 months old...and I am pretending I'm at school...
On second thought....I don't like this school thing, it is over yet!?
Play time with daddy!
I know i am cute!

Friday, August 20, 2010

So dad went gourmet and bought organic sweet potatoes and squash, baked them and pureed them.  Jack got his first taste and LOVES them!  Making baby food is not all that difficult after all... and it is kind of fun!

Yummy rice cereal

Trying to suck my thumb AND hold my spoon at the same time takes skills....


the prepared gourmet meal...squash and rice cereal
 
my crazy shirt dad bought for me....

Our new Bedroom!

Finally, After 6 years of marriage and a baby...we bout some bedroom furniture and new bedding!  All are courtesy of over-stock.com and Costco! (can you believe it!?!) I was jealous that Jack had pretty nice furniture (that we splurged on - hoping he will keep until he goes off till collage.)  I finally feel like an Adult!  It is finally relaxing to come into a nice, soothing bedroom!

Monday, August 16, 2010

Dancing in mindfields

James and I met when we were 18.  He is my very best friend, and I love him more today than ever before.  He has shown me steadfast love and has an endurance to run the race of life like no other.

I feel like we have endured things we have never dreamed of these past few months.  My heart does ache some days to know what the future may hold for Jack.  I am sure this is a normal parent feeling, none-the-less.  Sometimes, I feel like we are dancing in minefields...but I am so thankful God has blessed me with James to dance along with!

Wednesday, August 11, 2010

The Hiding Place


In a time of trouble, in a time forlorn,
There is a hiding place where hope is born.
There is a hiding place, a strong protective space,
Where God provides the grace to persevere;
For nothing can remove us from the Father’s love ,
Tho’ all may change, yet nothing changes here.
In a time of sorrow, in a time of grief, There is a hiding place to give relief.

In a time of danger, when out faith is proved,
There is a hiding place where we are loved.
There is a hiding place, a strong protective space,
Where God provides the grace to persevere;
For nothing can remove us from the Father’s love ,
Tho’ all may change, yet nothing changes here.
In a time of weakness, in a time of fear,
There is a hiding place Where God is near.

~Bryan Jeffery Leech