Saturday, July 16, 2011

Oscar Pistorius

Another amazing athlete with Fibular Hemimelia....Thanks for the inspiration

About Oscar Pisorius

Wednesday, July 6, 2011

Local Article in our Paper

Thanks Jerome for being an inspiration to us and Jack!  Awesome Story in our local newspaper of a boy born with Fibular Hemimelia; Now see where he is today......

http://www.postandcourier.com/news/2011/jul/06/on-the-right-track/

Sunday, June 19, 2011

The Beach!

This past week, some friends of ours were visiting from St. Louis and stayed on Seabrook Island.  Jack and I got to spend some time going to the very nice beach and pool with them!  Jack had so much fun!  Even though he'd been to the beach a few times before- he still didnt know what to do with sand - at first he thought he should start eating it! But quickly realized the texture and taste were not what he was used to.  I am sure we all ate a little sand in our life...

Here are a few pictures of our adventures:
















Thursday, June 16, 2011

Aimee Mullins: The opportunity of adversity

What a POWERFUL message.  Thank you Amiee Mullins for paving the way.  For allowing us to SEE each other in a different light, in a new perspective.  For being head-strong. For opening our eyes...







Thank You - Kenneth Cole for this Inspiring message:

Friday, May 20, 2011

Not so RaNdOm...

James and I were going for an evening walk with Jack around the neighborhood a few nights ago. Since weeks had gone by since either of us had spoken to each other about our decision for Jack's leg...we began talking. (I have always wondered if Jack could really understand what we are saying, because he seems to understand more than we think....so i feel guilty talking about him, the decision and my fears when he's around.)  None the less, we were in deep conversation when, out of nowhere a man wearing a prosthetic leg came flying past us riding his bike.  "Did you just see that?" I said to James, as we both slowed up our walking pace.   I have walked the 2.5 mile loop millions of times in our subdivision, at all hours of the day and NEVER I have I seen this man.  Part of me wanted to run and chase him down...but, as fast has he came, he was gone. 

God has some timing.  He also has a great sense of humor.  It was as if he was saying to us "Stop all this nonsense talking - Jack will be fine, trust ME."

Thanks Nike for sharing this inspirational moment:

Monday, May 9, 2011

Mothers Day!

Jack's Learning how to drink from a cup with a straw, it has been challenging but he is making good progress!

As I came home from work on Mothers day, Jack greeted me with a big smile!  I was so happy to see him! I really miss spending time with Jack and James on weekends  - but its what we have to do now...

Jack showing me his "painting" he made with daddy..."Sailboat on the water"  I was SO touched that James would have worked with Jack to create a special mothers day gift!!  James said Jack was pretty messy with paint, but he had a blast!



Jack's paintings (with daddy's help)  "Sailboat on the water"

Friday, April 29, 2011

13 Months!

Well, it seems like once a month I am updating the blog - perhaps I will get better at doing it a little more frequently!

Some Jack Happenings:

We are still working on lots of physical therapy.  Jack has mastered the 'army crawl' and is getting around much more.  Its amazing how he will move so fast without getting up on all 4's. He essentially pulls himself with his arms and bending one leg.   I am just thrilled that he is moving.  Our next task is getting him to stand and start pulling up to stand.  He has initiated this only a few times on his own.  The other problem is he will need to wear a shoe lift or brace on his Right leg, otherwise he ends up putting all his weight on his left leg.  We are having a difficult time finding something that fits him, and/or how to manage his small foot.  Both his feet are small and different sizes, making buying shoes pretty difficult. His Left foot is a size 2 and Right foot is a size 0.  We are working with the local orthotics/brace company in Charleston to help Jack.  Jack has never had a 'real' pair of shoes - yet!   He is still wearing his shoes/bar at night to correct his Left club-foot and will continue to do so untill 2 or 3 years old.   I will say, that Jack does very well at night letting us put his shoes on before bed.  I will be SO happy, though, when he does not have to wear them - bedtime routine will be SO much easier!

I find myself thinking of Jack and his life daily.  It tends to consume my thoughts some days - making me so overwhelmed.  Part of me deep down wishes that he didn't have to endure learning to do things 'different' -(even though they won't be different to him) or watching other kids ask about his hand.  I know we have many hurdles to overcome - just like so many people.  What I am learning from Jack is your perspective and attitude about life gives you stamina and hope.

Tuesday, I went to Stono market to pick up my weekly share of fruits/veggies.  I usually go in the morning, but was not feeling well and decided to go after Jack woke up from his nap.  It's a small store, and usually not many people are there when we go.  Jack was particularly fussy this time, so instead of being in the stroller I had to hold him while I picked out my veggies and put them in the bag (not an easy task - even with 2 hands...gee I wonder how Jack will do such things...?) Anyway, as I was busy a lady in her 60's came up next to me and began to make conversation about the produce.  It took me a few min before I realized that she only had one arm, the other arm stopped at her elbow.  I stopped what I was doing, and asked her about her arm.  She said she was born with it.  I pulled jack's arm from behind my shoulder and she then saw his arm too.  We talked, and I gained so much insight.  She is retired, has children and grandchildren and moved to Charleston to be with them.  She was also a nurse in an adult ICU for 35 years!  Can you believe that! She told me how she learned to start IV's with one hand, move patients in bed (which she does not recommend, now because of problems with her good arm), play sports etc.  Not only did she give me a "slap-in-the-face-stop-feeling-sorry-for-Jack" she also make me stop feeling sorry for myself.   O how the Lord knew I needed that just then!  What perfect timing he has!!

Here are some updated pictures from this month!
Peek-a-boo!

LOVE riding in my wagon!


Trying to feed myself!

Daddy took me to the air-show here in Charleston - BOY was it cool and LOUD!!!




Playing with Daddy!

Trying to eat corn on the cob!

Crawling under the table to get my choo-choo!

I LOVE my turtle!